The Studies of Primary Sclerosing Cholangitis (STOPSC) is a multi-center research effort initiated, funded, and organized by The Musette and Allen Morgan Jr. Foundation. Primary Sclerosing Cholangitis (PSC) is a destructive liver disease of unknown origin that occurs in both males and females and in children and adults. About one person in 100,000 will get the disease and many individuals will also get inflammatory bowel disease (IBD). There is currently no proven medical treatment for the disease. The study will also include adults and children with a diagnosis of PSC/Autoimmune Hepatitis (AIH) overlap syndrome and children diagnosed with AIH, because the clinical aspects and the possible causes of these diseases may be related.
The major goal of this study is to create a data and specimen storehouse and to make this information available to other qualified researchers so that they can conduct future studies that fit within the broad objectives of the STOPSC program.